Research / Take part
Kidney stone research needs people who form kidney stones
Studies into prevention are small and slow, and the most common reason is that they cannot find enough participants. If you would consider taking part in one, adding your name here is the single most useful thing you can do for the next person who ends up in an emergency department at three in the morning.
What this actually is
A mailing list, and nothing more clever than that. When a study recruiting people with kidney stones comes to our attention — and when it is one we would be comfortable telling a friend about — we email the list. You read it, and you decide. Any contact after that is between you and the research team.
We are not a research organisation and we do not run studies. We do not screen you, match you, or pass your details to anyone.
What we hold, and what we refuse to
We hold
- Your email address
- Your country, and your state if you are in the US
- The date you joined
We deliberately do not ask
- How many stones you have had
- Your stone type
- Any test result
- Anything else about your health
It would be easy to ask, and it would make the list more valuable to a researcher. We are not going to. Location is enough to know whether a study near you is worth telling you about, and everything past that is a detail you should give to a clinician or a research team — not to a mailing list. It also means this list holds no health data at all, which is a much better position for everyone if something ever goes wrong.
Join the list
Recruiting right now
9 studies across 11 US statesYou do not need us to reach any of these — they are public, and you can contact the teams directly today. Listing one is not a recommendation to join it. Talk to your own clinician first.
| Study | Phase | Enrolling | States |
|---|---|---|---|
| Tract Closure in PCNL | NA | 92 | New York |
| CaOx Stone Prevention | PHASE4 | 80 | New York |
| Study of YOLT-203 in Children and Adults With Primary Hyperoxaluria Type 1 (PH1) | PHASE2 | 36 | Alabama |
| Prospective Research Rare Kidney Stones (ProRKS) | N/A | 220 | Alabama, Florida, Illinois, Massachusetts +4 |
| Trial of Ureteroscopy vs Steerable Continuous Flow Aspiration Technology | NA | 150 | Alabama, Florida, New York, Pennsylvania +1 |
| Observational Approach Versus Surgical Intervention for Stones | NA | 1658 | Pennsylvania |
| Rare Kidney Stone Consortium Biobank | N/A | 2000 | Minnesota |
| Intraoperative Assessment of of Burst Wave Lithotripsy (BWL) | NA | 40 | Indiana, Washington |
| Rare Kidney Stone Consortium Patient Registry | N/A | 730 | Minnesota, New York |
Source: ClinicalTrials.gov, public domain.
For researchers
If you are running a study on kidney stone prevention and struggling to recruit, write to us. We will tell you what the list looks like in aggregate — how many people, in which regions — before you decide whether it is worth anything to you. We do not sell access and we do not hand over addresses; the most we will ever do is send your study to the list and let people come to you.